Drive evidence-based research and information distribution that will enable ASXL-impacted children to have an improved quality of life. Prevent: Improve medical and overall management of care through early identification of health risks and optimization of treatments Improve: Use evidence-based research to justify medical needs, therapies, services, and equipment needs. Inform: Enable caregivers and providers to be effective advocates

Health , Medical Research

basic & clinical research grants and ASXL conferences

individuals with congential ASXL syndromes